I have/had it! It was a long, long struggle trying to figure out what exactly I had and cycled through many different diagnoses.
My joint pain became so bad I was in a wheel chair. Hot compresses or cold (whichever your body prefers) can be a big help and yoga too. If you're sensitive to exercise, go really really slow. Like five minutes of exercise, then six a week later and so on. It feels tedious but it helps.
And don't be hard on yourself! I am someone that has a really hard time just allowing myself to rest without feeling like I should be doing something. Stress can make fatigue and joint pain much worse. So make sure to schedule in some self love and relaxation time. Don't push yourself - allow your body to dictate what it can do. Pushing will only be worse in the long term.
I pushed myself really hard last week and now I'm majorly paying the price.
Also, this was the big one for me - ask your doctor about Celiac & Gluten Sensitivity along with Chronic Fatigue Syndrome (CFS). After several years of no answers, we found out I was sensitive to gluten (likely Celiac as I tested positive via genetic testing but no official diagnosis as I do not want to go back on gluten for ~6 months to get an accurate blood test). My gluten sensitivity had been causing my joint pain, fatigue, and brain fog all those years without anyone having an idea that could have been the answer. My rheumatologist was stunned and now screens her patients for Celiac if they're showing fibromyalgia sympyoms. I was severely deficient for most nutrients which only made the issues worse - this was also caused by my gluten sensitivity.
Now, five years post adopting a very gluten free diet, I rarely if ever have any joint pain - only present at times of stress. I am extremely sensitive to pain and touch though. I still struggle daily with fatigue due to my CFS and headaches but it's definitely letting up. And my vitamin levels still are iffy - I was previously on ~70 supplements and now I'm just down to a handful.
My PM's are always open. :)
Sunny
