Very Clear with night time Meteor Shower| Painted Perfection |
| My drs gave me the link to the official EDS website to look more into it and do more research on my conditions. It was very enlightening and gave me a sense of im no longer 'crazy' or a hypochondriac about being sick all the time. I have something legit causing all my issues and that I'm not alone. Since then Ive stopped listening to all the people around me who thing Im imagining crap anymore. |
| Painted Perfection |
| Yes. And theyd want to rule out the ithers anyways especially the blood and heart ones because of of how dangerous they are |
| Ehlers Danlos Zebra |
| Yeah I know :( But they still have to rule out the other forms to give a formal hEDS diagnosis, right? |
| Painted Perfection |
| If you have Hypermobility type they wont find it on the genetic tests yet because they still don't know the gene that causes it |
| Painted Perfection |
| I got genetic tested. But I have hEDS so they didnt find it on the genetic test but I scored very high on the beightons test and ive got tons of health issues that are related to having it |
| Ehlers Danlos Zebra |
| I'm on the list for genetic testing next year, but it would explain my entire life lol. It's also why I started playing HEE again, it sparked my interest with genetics |
| Painted Perfection |
| I got my diagnosis a few years ago now. As an adult with it it definitely helped explain a lot |
| Ehlers Danlos Zebra |
| supposedly not, but you're like the 3rd person on here within a couple weeks |
| Ehlers Danlos Zebra |
| Now if I could snatch some water at stable raid today, that would kill two birds with one stone... I threw a Capture pass in there to be in favor of the HEE gods haha |
|
| Painted Perfection |
| My drs gave me the link to the official EDS website to look more into it and do more research on my conditions. It was very enlightening and gave me a sense of im no longer 'crazy' or a hypochondriac about being sick all the time. I have something legit causing all my issues and that I'm not alone. Since then Ive stopped listening to all the people around me who thing Im imagining crap anymore. |
| Painted Perfection |
| Yes. And theyd want to rule out the ithers anyways especially the blood and heart ones because of of how dangerous they are |
| Ehlers Danlos Zebra |
| Yeah I know :( But they still have to rule out the other forms to give a formal hEDS diagnosis, right? |
| Painted Perfection |
| If you have Hypermobility type they wont find it on the genetic tests yet because they still don't know the gene that causes it |
| Painted Perfection |
| I got genetic tested. But I have hEDS so they didnt find it on the genetic test but I scored very high on the beightons test and ive got tons of health issues that are related to having it |
| Ehlers Danlos Zebra |
| I'm on the list for genetic testing next year, but it would explain my entire life lol. It's also why I started playing HEE again, it sparked my interest with genetics |
| Painted Perfection |
| I got my diagnosis a few years ago now. As an adult with it it definitely helped explain a lot |
| Ehlers Danlos Zebra |
| supposedly not, but you're like the 3rd person on here within a couple weeks |
| Ehlers Danlos Zebra |
| Now if I could snatch some water at stable raid today, that would kill two birds with one stone... I threw a Capture pass in there to be in favor of the HEE gods haha |
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